Living a “normal” life when one person in the house lives with epilepsy is not easily attainable, but it is what we have always strived for. Many times in our lives, I have assimilated our situation to the old expression of having an elephant in the room; everyone knows there is a big issue, but we individually and silently choose not to acknowledge it most of the time.
My name is Dodie. I am a mother of four daughters. My youngest daughter was born in 1997, and in April of 1998, she was diagnosed with epilepsy. There is a saying in the epilepsy community: “I have epilepsy, epilepsy doesn’t have me.” While I want to believe this statement, and while I have done my best to always focus on the positive, and to live life to its fullest, I would be a liar if I told you epilepsy has not affected many decisions in our lives. Epilepsy has affected so many life choices, big and small. This blog is a place for me to share our experiences, our choices, our emotions, and our story. I am hopeful that I will be able to give insight to people living with epilepsy, whether you have epilepsy yourself, or if you are a caregiver, a friend, or a family member.
“We must let go of the life we have planned, so as to accept the one that is waiting for us.”
— Joseph Campbell